A revolutionary treatment has saved the life of a young Syrian refugee with a rare skin disease called junctional epidermolysis bullosa (JEB).
This genetic condition, affecting 0.37 people per million, causes the skin to blister and fall off easily, earning patients the name “Butterfly Children.”
Doctors in Germany were desperate after their treatments failed.
They reached out to Michele De Luca from Italy, known for his gene therapy work.
De Luca’s team corrected the boy’s faulty gene and grew new skin.
Now, over a year later …
